Tag Archives: Transverse Myelitis

A Bit of an Update ~ The Days Ahead

05 Tuesday Sep 2017

Posted by in My Thoughts

≈ 49 Comments

Tags

, , , , , , , , , ,

Good evening/morning, dear friends,

I’ll try not to ramble, but please forgive me if I do  🙂

Most of you who have been following my blog for some time know how upside down my life has been over the past year and a half.  My daughter had been in and out of the hospital for most of 2016 and a part of the beginning of 2017.  She suffers from Sjogren’s Syndrome, among other things, and she’s only 27.  It breaks my heart to see someone so young struggling to get through a day that others think nothing of.  For those of you who pray, please keep her in your thoughts.  Thank you.  🙂

As for me, well, that’s another can of worms.  I suffer from Transverse Myelitis and was recently diagnosed with “essential tremor“.  To say this freaked me out, is putting it mildly.  There is no cure.  They will get progressively worse.  So, if I miss commenting or liking your post, please don’t hold it against me.  My days are filled with trying to take care of everything else, including beginning to pack as we’ll need to sell our home.  There usually isn’t time to take care of me, but looks like I won’t have much choice.  It’s getting harder to type, so I will eventually need to switch to my Dragon software and go voice to type.  I’m so frustrated over all of it.

I love you all, and always appreciate your support, from the bottom of my heart.  I haven’t forgotten you.  Just be patient with me.  I’ll figure it all out.  I’m not a quitter by any means.  I only know how to fight for what I want and this is a battle I am sure to win!!

~ Dorinda

You Look Fine

19 Tuesday Jan 2016

Posted by in Poems, Poetry

≈ 18 Comments

Tags

, , , , , , , , , , , , , , , , , , ,

I wrote this piece in March 2014.  I’m sharing again because just recently, my daughter experienced this.  Please be kind to others, you don’t know what battles they are facing…..

girl-worried-1215261_960_720
You will never see
the silent pain, or the broken souls
who question why
Or how or what
they did to deserve this
enormous disruption of their lives.

Independency taken
away in the blink of an eye
and never an understanding
It becomes a constant battle
to make those around them perceive
the reality.

The glares of the accusing
unaware, of the horror within
the courageous body before them
They poke and tease
with disbeliefs and “you look fine”s
without an inkling or thought
as to what they suggest.

But the strong do not give up, do not stop
the fight against a villain
who showed unwelcomed one day
They struggle and confront the world
that looks upon them unsure, skeptical
Uncertain

They are brave and fierce people
who will not let this malady define them
who will not let the constant depression
sadden the brightest days
Who choose, instead, to be an inspiration
to others who fight a similar battle
with compassion, caring…hope

 

Dedicated to those who fight a silent battle, whatever it may be. God bless all of you.

 

©2014 Dorinda Duclos  All Rights Reserved

Sugar is NOT Always So Sweet

26 Sunday Oct 2014

Posted by in Blogging, My Thoughts

≈ Leave a comment

Tags

, , , ,

I jokingly said, as I rolled out of my nice comfy bed, “I’m heading down to prick my finger on a spindle.”

 

Truth is, it’s no joke. I was recently diagnosed with Type 2 Diabetes. Along with that comes the daily blood testing (my fingers are rebelling) and all the “you can’t have this” and “watch your carbs”. You have to understand that telling me to “watch my carbs” is like cutting off both arms and legs. I am a carbaholic. But, cut them I have. However, I absolutely refuse to eliminate them from my eating plan.

Sugar-No-thanks-i-m-sweet-enough-Inspirerende-quote.1404759467-van-AandekookI guess it was inevitable. My paternal grandmother was diabetic, my dad was and my mom is. Genetics is not on my side. However, I refuse to let this dominate who I am. I am in control. And I say “TAKE A HIKE, GET LOST, GO AWAY!” So this is my next journey in this thing called life. I refuse to allow any illness to take over my being. I have fought all my life, from my birth, a major car accident (in which the officer on the scene said he was only dispatched for fatalities. I told him I was sorry I ruined his day), to being diagnosed with Transverse Myelitis, an illness that completely turned my life upside down. But here I am, still standing, stronger than ever and more determined to rid myself of these evil entities.

I guess you’re wondering why I am telling you this. It’s like this. If you’re following my blog or reading on Facebook, Twitter, LinkedIn, Google+, etc, then you’re already on my journey with me. The ups and downs of my writing are a reflection of me. And you’re along for the ride. Buckle up, it may get bumpy.

If you have Diabetes and would like to share your story, tips, etc, please feel free to leave a comment.  I would love to know how others handle their condition.  Thanks!

Dorinda

For more info on Diabetes, please visit: American Diabetes Association
For more info on Transverse Myelitis, please visit: The Transverse Myelitis Association

You Look Fine

02 Sunday Mar 2014

Posted by in Life, Poems, Poetry

≈ 4 Comments

Tags

, , , , , , , , , , , , , , , , , ,

girl-worried-1215261_960_720You will never see
the silent pain, or the broken souls
who question why
Or how or what
they did to deserve this
enormous disruption of their lives.

Independency taken
away in the blink of an eye
and never an understanding
It becomes a constant battle
to make those around them perceive
the reality.

The glares of the accusing
unaware, of the horror within
the courageous body before them
They poke and tease
with disbeliefs and “you look fine”s
without an inkling or thought
as to what they suggest.

But the strong do not give up, do not stop
the fight against a villain
who showed unwelcomed one day
They struggle and confront the world
that looks upon them unsure, skeptical
Uncertain

They are brave and fierce people
who will not let this malady define them
who will not let the constant depression
sadden the brightest days
Who choose, instead, to be an inspiration
to others who fight a similar battle
with compassion, caring…hope

Dedicated to those who fight a silent battle, whatever it may be.  God bless all of you.

©2014 Dorinda Duclos  All Rights Reserved